Ten Years Post Diagnosis: Reflections or Fuck. This. Shit.

Apocalypse, Be nice, Chilling on my goddamn superyacht., Death, Dissolving into liquid sky, Fatigue, Feminism, Happiness, I'd like to sit down please, It's not fair, Lemtrada, Life is hard, Medication, MS, Multiple Sclerosis, Vegetarianism, Women

Ten years, then. At diagnosis I was 27nearly28, so the mathematically inclined reader will naturally put two and two together (or add ten which, in this case, makes more sense) to find that I’m now 37nearly38. Rapidly approaching my three-score and ten. Or forty. Ridiculous.

Imagine, if you will, a school reunion scenario – and that Facebook* never existed so everyone doesn’t already know everyone else’s business anyway.

“Ema, hello, please fill me in on the details of your life since last we met.”

“Gladly. I have developed and continue to live with a chronic illness. Plus I would never go to such an event and have no interest in your stupid life.”

Such are the workings of a fully adult mind. Look ye on my sophisticated brain and despair!

Think of a way to link this paragraph to the last! Thanks. Finally gone vegetarian. Pescatarian. Few pesca, many vege. I’m Being Ecological. Read this book, by Timothy Morton. Had to reread each paragraph about three times to give myself a shot at vaguely understanding it. We’re being ecological just by living, breathing and occupying the same space as all the other human and nonhuman beings on this planet, man. Changed my life. Or viewpoint. Or at least something. Another book. Not a good one but one I found helpful. The Unexpected Joy of Being Sober by someone but I can’t remember who. Also mindset altering. Plus, obviously not sober, but drinking less which is better. ‘‘Tis all a work in progress. We must be kind to ourselves. Stop beating yourself up! You are not in Fight Club.

See, being close to a human constructed milestone (Being Forty), has triggered in me a fix-ur-life-up kind of thing. I think it’s about surrendering to the process. What’s the endgame? Where do you (I) want to get to? Ethically, health-wise, fitness and body-wise. Aiming for well-toned-vegan-ethical-nightmare. Although.

Literally, it’s a return to the earth, the dust, the air from whence we came. (Out, out brief candle!) Surrendering to the eventual and inevitable end: a goodbad idea.

We’re not here for long so remember to turn the lights off and don’t make too much mess.

In conclusion. Reflecting on the last ten years through my MS-tinted glasses. It’s a bit shit, really. A more detailed and boring reflection: the Lemtrada‘s working, last few MRIs show No Evidence of Disease Activity (NEDA), I’m mostly exhausted which is awful, I bore myself.

End with a joke. Thank your audience. Vacate the stage quickly. Lights out.

* scandal-hit

Advertisements

Here’s looking at you, kid. 

Anxiety, Career, Employment, Happiness, MS, Multiple Sclerosis, Sorry Morrissey, Vegetarianism, Worry

Yesterday, I went into ‘my’ school to drop off ‘my’ laptop, keys, id badge and to collect my stuff, teacher stuff, you know, pencil cases, laminator, mini guillotine thing, from ‘my’ classroom. And that was the end of my career as a teacher.*  

90s callback! Oh Egg…

  

Pardon? Say that again? Well, I can’t make out what you’re saying if you don’t enunciate, boy! Jesus. How do I feel? Er. I dunno. A little defeated, a little melancholy, a little unsure of my place in the world. Out of sorts. Alas, like Icarus I overreached! 

But as C, wise as ever, has told (texted) me: A failed experiment is better than one not tried at all. In the words of Aliyah, another wise woman, I better ‘dust myself off and try again’. 
So. This is an opportunity, I guess, to take a good long look at my life and try to answer that near impossible question, what is it that I actually want? Whilst still earning a sufficient amount to cover the bills/at least some fun stuff obvs. 

Something’s just occurred to me, I don’t know if I’ve mentioned it before? MS is a total and complete kleptomaniacal bastard. 

My plan is then, to stay positive – can we turn that frown upside down! 

An aside: *book recommendation siren* I just finished reading Sapiens: A Brief History of Humankind by Yuval Harari and, in the final chapters, he talks about happiness, about how as individuals we each have a kind of innate happiness setting, like how air-con maintains a specific room temperature, and I think mine is probably about a four, so staying positive? Tricky. D’s however is an annoying seven, so I can’t worry too much about breaking my next decision to him because, he’s a seven! He’ll get back to that pretty quickly. He’s a resilient fellow. So here goes. After eating tonight’s undoubtedly delicious chicken based dinner, I will no longer be consuming meat!** For reasons most people figure out when they’re thirteen. Not thirty-five. Better late than never, eh Morrissey! Morrissey? Come back, Morrissey! 

 
That’s the extent of my plan thus far.***

I’m sure I had more I wanted to share, but the sky has full on clouded over, and my brain has ceased to function. Well, not entirely so you don’t need to call an ambulance or anything. What is it with you taking everything I say so literally? Man. 

See ya. 

*You’re right, I will be doing some supply, but to earn a living, not as a career. 

**We’ll discuss this. 

***There’s a bit more irl.